10-year-old Lillie Windsor suffers with quadriplegic spastic and athletic cerebral palsy as well as chronic lung disease. As a result, she is unable to talk, stand, crawl or sit unaided.
Lillie’s Innowalk device, which she uses for 45 minutes each day, allows her to get crucial exercise and has helped her avoid numerous operations which would otherwise have been essential.
However, Lillie is growing fast and will soon be unable to use the machine. Her parents, Kim and Ben Windsor, of Willenhall, are desperately to trying to raise funds as quickly as possible so they can purchase a new Innowalk machine before she outgrows the old one.
“This machine is such an important part of everyday life for Lillie and has made such a difference to her,” reads the story on the Just Giving page. “She is having a growth spurt currently so we are very quickly running out of time.”
Unfortunately, the current machine cannot be part-exchanged due to it being over five years old, so the family have no option but to raise the funds to buy a new one.
Current donations stand at £13,980 as from 3 September, so they are almost halfway to raising the money.
If you can help, please join the Lillie’s Eye Gaze Fund Facebook group, where the community are working together to raise money with raffles, sales and all sorts of initiatives to get involved in.
If you’re a local business that can help, please get in touch.
Further information from the Lillie’s Eye Gaze Fund Facebook page
“Lillie Grace Windsor (formerly Scott) was born ten weeks early in July 2011 weighing 3lb 14oz. As a result she suffers quadriplegic spastic and athetoid cerebral palsy, chronic lung disease of prematurity and is colonised with pseudamonus. She spent nine weeks on the Neonatal Unit at New Cross Hospital before being allowed home.
Lillie could not swallow so she was fed via a tube down her nose.
In her first year the longest period Lillie spent out of hospital was three weeks. She had severe reflux which was continuously entering her lungs causing aspiration pneumonia.
This is a life-threatening condition.
In July 2012, just five days after her first birthday, Lillie had a life-saving operation to stop the reflux. At the same time, she had a peg tube fitted which means she is now fed directly into her stomach and no longer has a tube down her nose.
In December 2012 we finally got Lillie’s diagnosis. Her condition means she cannot sit unaided, stand, crawl, walk or talk.
Lillie’s page is regularly updated to show her progress and what she’s up to. Also to show everyone who has been kind enough to contribute to her fundraising over the years that she is getting full use of the equipment they helped to buy. We couldn’t do it without you all.”